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Caregiving
Caregiver Stress
Journal
Pinquart M. Sorensen S.(2003). Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. Journals of Gerontology Series B-Psychological Sciences & Social Sciences. 58(2):P112-28.
Haley WE. Gitlin LN. Wisniewski SR. Mahoney DF. Coon DW. Winter L. Corcoran M. Schinfeld S. Ory M. (2004). Well-being, appraisal, and coping in African-American and Caucasian dementia caregivers: findings from the REACH study. [Multicenter Study] Aging & Mental Health. 8(4):316-29.
Sands LP. Ferreira P. Stewart AL. Brod M. Yaffe K. ( 2004, May-June) What explains differences between dementia patients' and their caregivers' ratings of patients' quality of life?. American Journal of Geriatric Psychiatry. 12(3):272-80.
Martin-Cook K. Remakel-Davis B. Svetlik D. Hynan LS. Weiner MF. (2003, November-December). Caregiver attribution and resentment in dementia care. [Randomized Controlled Trial] American Journal of Alzheimer's Disease & Other Dementia s. 18(6):366-74.
McDonald PE. Fink SV. Wykle ML. (1999). Self-reported health-promoting behaviors of black and white caregivers. Western Journal of Nursing Research. 21(4):538-48.
Fink SV. (1995). The influence of family resources and family demands on the strains and well-being of caregiving families. Nursing Research. 44(3):139-46.
Mourik JC. Rosso SM. Niermeijer MF. Duivenvoorden HJ. Van Swieten JC. Tibben A. (2004). Frontotemporal dementia : behavioral symptoms and caregiver distress. Dementia & Geriatric Cognitive Disorders. 18(3-4):299-306 .
Community Services for Care Management
Help line, 24 hour Alzheimer's Association, 1-800-272-3900
Online
Alzheimer's Association
www.alz.org , Find your local chapter
By National Area Agency on Aging description of all their services
www.n4a.org/aboutaaas.cfm
By U.S. Administration on Aging, nationwide database and locator for community resources
www.eldercare.gov
Financial Resources for Family Caregiving
Online
Caregiver news and research briefs, newsletter, "long-term care insurance analyzer," Associated with Eldercare
www.alzwell.com
Book
Yeaworth, R. C. (November, 2002). Long-term care and insurance. Journal of Gerontological Nursing, 45-51.
Advanced Directives: DPOA of healthcare, Guardianship, etc
Online
American Health Assistance Foundation: Provides financial assistance and resources to eligible families.
www.ahaf.org/index.html, Go to "Alzheimer's Family Relief Program"
Legal Issues
Long-term Care Insurance
Online
Caring Connections: Discusses importance of communication and advanced directive issues. Provides specific state documents online for use. Select button for Advance care directives.
www.caringinfo.org/
Healthcare advanced directive documents, prepare online and print www.LegacyWriter.com
Multiple topics of interest including "Guardianship" and "Selecting an Attorney"
www.agenet.com , Go to "Legal"
Journal
Maxfield CL. Pohl JM. Colling K. (2003). Advance directives: a guide for patient discussions. Nurse Practitioner. 28(5):38-47.
Rempusheski, V.F. & Hurley, A.C. (2000). Advanced directives and dementia. Journal of Gerontological Nursing, 26(10), 27-33.
Dementia Oriented Policy
Online
www.caregiving.org , Go to International Legislation and choose country of interest
www.n4a.org , Go to "policy papers" and "advocacy alerts" for the latest
By the National Council on the Aging, current aging issues on Capitol Hill and how to take action
www.ncoa.org/content.cfm?sectionID=58
Caregiver Policy Digest, bi-monthly online free newsletter latest aging policy issues.
www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=467
Online Caregiver Focused Education
Family Caregiving Alliance: Educational & Valid info., plus online discussion groups.
www.caregiving.com
By The American Geriatrics Society, family-friendly educational materials on critical concepts of memory loss
www.healthinaging.org, Go to "Public Education," then to "Memory Loss"
Caregiver resource site by Gerontologist, video training and caregiver workshops
www.geriatric-resources.com/index.html
Support Groups
By NFCA & NAC: Fun support outlets and caregiving tips
www.familycaregiving101.org
Many local chapters as well as "online mentors"
www.wellspouse.org
Support groups and advocacy opportunities
www.caregiversarmy.org
Other Peoples Stories
The Forgetting (Shenk, D) (2001); Alz Dz historical, scientific, political, and psychological perspective
The Room is Yours (Stein, M)
Keep Your Brain Young (Albert, M)
A loving voice: A caregiver's book of read-aloud stories for the elderly Edited by Carolyn Banks and Janis Rizzo
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